Ellie Reminds Her Family of the Magic of a Good Snuggle

Ellie Reminds Her Family of the Magic of a Good Snuggle

Eight years and five open heart surgeries later, heart warrior Ellie is still teaching her family valuable lessons about slowing down and living in the moment. Ellie was born with Atrioventricular canal defect (AV canal defect), a rare congenital heart…

Every Little Milestone Counts … Big!

Every Little Milestone Counts … Big!

Ollie spent his first Halloween at Children’s Healthcare of Atlanta Heart Center in the CICU, just 7 days post-op from his second open heart surgery. Mom Stephanie remembers that they had to get special permission to allow Ollie’s big brother,…

Heart Warrior Mom Turns Fear into Connection and Advocacy

Heart Warrior Mom Turns Fear into Connection and Advocacy

Although she had a few months and the support of Children’s Healthcare of Atlanta Cardiology to prepare, Karlee said handing her newborn over to strangers with the hope that they could save his life presented a whole new level of…

Advocating for Other Heart Warriors Helps Jameson’s Family Thrive

Advocating for Other Heart Warriors Helps Jameson’s Family Thrive

Being diagnosed at two days old with Tetralogy of Fallot right as the COVID-19 pandemic begun caused Jameson’s parents a great deal of fear and anxiety. Since those early days, Jameson’s mom, Jamie, has managed the fear by educating herself…

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