At 32 weeks pregnant, we were sent to a specialist, during this ultrasound our stubborn baby boy wouldn’t move his hand. This led to ultrasound after ultrasound… and our baby boy was diagnosed in-utero with Hypoplastic Left Heart Syndrome.
At 2:37 PM on December 20, 7lb 2oz Coltyn Lee Fuller came into the world.
Less than 12 hours later, Coltyn took his first ambulance ride from Northside Hospital to Children’s Healthcare of Atlanta. On arrival, Coltyn’s medical team started preparation for his first procedure, the Norwood. Thirteen days after he was born, Coltyn made his first trip home to meet his sister and be with his family.
Over the next 4 months, Coltyn had bi-weekly cardiology visits. In April 2012, Coltyn headed back to CHOA to conquer the next step in his journey, The Glenn Procedure. After eight days, he came home again, more active and able to play.
In December 2014, Coltyn’s cardiologist told us it was time for the next surgery. In January of 2015, Coltyn made a third trip to CHOA for his Fontan procedure. This time, the doctors would be working on the right side of his heart, too, because a leak on the right side of his heart needed repair. Four short days after surgery, Coltyn headed home with us.
Although the right-side repair was unsuccessful, the leak is managed with blood pressure medicine, and the third trip to CHOA made a huge difference. We knew Coltyn would feel much better after this surgery, but we never imagined he would have so much energy! Today, he is a rambunctious 5 year old boy with a silly sense of humor. He won the “Class Clown” and “Heart of Gold” awards in his Pre-K class.
Despite the severity of Coltyn’s condition and the stages yet to come, it never gets old when people are shocked to learn what he has accomplished. Although the cause of Hypoplastic Left Heart Syndrome is unknown, the purpose of what Coltyn and his medical team have conquered is not. Though he only has half a heart, Coltyn has a heart full of love to give. He never meets a stranger and brings joy and laughter to everyone he meets. He is a walking testimony of God’s grace and love.