When a family is confronted with a serious health diagnosis for their child like a congenital heart defect (CHD), it can feel like the whole world has suddenly shifted beneath their feet. They are often thrust into a new way…
Taylor and Kris started their family young, and they didn’t know much about congenital heart defects in children. But when their first child, Kholson, was diagnosed with serious Congenital Heart Diseases before he was born, they threw themselves into learning…
When Elena had life-saving heart surgery at just two days old, her mom Amanda says they must have poured a little extra love and kindness in before they closed her up. Going from a devastating diagnosis of Dextro-Transposition of the…
Sending a child to kindergarten with a CHD diagnosis can be nerve-wracking. But when Katie looks back on that day now, she can only be amazed by all her daughter has accomplished. Born 21 years ago at just four pounds…
Eight-year-old Rudy’s mom, Heidi, said her family’s world was flipped upside down when her son had three open heart surgeries in two years to correct his CHDs. But she looks at him today and sees strong little boy who loves…
After a typical pregnancy and uneventful delivery, Holly and Dan didn’t expect to be doing anything other than enjoying the birth of their second daughter with their family. But just hours after Annabelle’s birth, they discovered she had a rare…
Even before Everleigh Faith came into the world, her name marked her as a miracle child who would overcome great obstacles. Diagnosed with Tetralogy of Fallot, Pulmonary Atresia and MAPCAS (Major Aortopulmonary Collateral Arteries), her congenital heart disease (CHD) journey…
Although heart warrior journeys sometimes start out in unexpected ways, watching their children overcome great challenges never fails to inspire parents and families, as well as the providers who care for them. Mahnya, whose twin daughters were born at 32…
Lisa learned at 22 weeks pregnant that her son had a set of serious congenital heart defects called Truncus Arteriosus, Aortic Arch Interruption and ventricular septal defect (VSD). Knowing very little about the CHD world at that point, she set…
When Sienna’s parents look back on her two short years as a heart warrior, one word comes to mind: Resilience. During Shannon’s pregnancy, a prenatal echocardiogram showed that Sienna possibly had Coarctation of the Aorta (COA), which was confirmed immediately…
